This form structure is an organized set of data definitions for a copyrighted form

 General Details

Title:
NIH Toolbox Emotion Domain Meaning and Purpose Survey CAT 18-85
Short Name:
NIHTBMeaningPrpseCAT18to85
Description:
The NIH Toolbox Meaning and Purpose Survey is a self-report measure that is administered only to ages 18-85, as a computer-adaptive test. In addition, a fixed-length self-report form is available for ages 18-85, as a supplemental measure. Copyright 2012 Northwestern University and the National Institutes of Health. http://www.nihtoolbox.org/Pages/NIH-Toolbox-Terms-and-Conditions.aspx
Disease:
Traumatic Brain Injury , General (For all diseases)
Organization:
NIH/CIT/DCB
Required Program Form:
No
Standardization:
Standard NINDS CDE
Labels:
Form Type:
Clinical Assessment
Version:
1.0
Date Created:
2016-07-08
Owner:
Number of Data Elements:
50
eForms:
N

 Documentation


 Groups & Attached Data Elements

Logically grouped data elements with defined frequency at which they repeat.

# Title Short Description Variable Name Required? Type
1 GUID   Global Unique ID which uniquely identifies a subject GUID Required CDE
2 Subject identifier number   An identification number assigned to the participant/subject within a given protocol or a study. SubjectIDNum Optional CDE
3 Age in years   Value for participant's subject age recorded in years. AgeYrs Recommended CDE
4 Vital status   Status of participant/subject as alive or dead VitStatus Optional CDE
5 Visit date   Actual interview or visit date VisitDate Recommended CDE
6 Site name   The name of the site for the study SiteName Recommended CDE
7 Days since baseline   The number of days since baseline DaysSinceBaseline Optional CDE
8 Case control indicator   Indicator of whether subject is in the case or control arm of the study CaseContrlInd Optional CDE
9 General notes text   General notes GeneralNotesTxt Optional CDE

Additional Element Groups

Listed below are your additional element groups.

Form Administration (Appears Up To 1 Time)

# Title Short Description Variable Name Required? Type
1 Language form administration ISO code  Code (ISO 639-2) for the language that was used for CRF/instrument/scale/etc. administration LangCRFAdministratISOCode Recommended CDE
2 Language form administration ISO code other text  The free-text field related to 'Language used for CRF/instrument/scale/etc. administration ISO code' specifying other text. LangCRFAdministratISOCodeOTH Recommended CDE
3 Context type  The context to which the questions were answered ContextType Recommended CDE
4 Context type other text  The free-text related to ContextType specifying other text ContextTypeOTH Recommended CDE
5 Data source  Source of the data provided on the case report form DataSource Recommended CDE
6 Data source other text  The free-text field related to Data source specifying other text. Source of the data provided on the case report form DataSourceOTH Recommended CDE

NIH Toolbox Administration (Appears Up To 1 Time)

# Title Short Description Variable Name Required? Type
1 NIH Toolbox - Test domain battery type  Type of domain battery for the NIH Toolbox test being administered, as a part of the NIH Toolbox NIHTBTestDomainBatteryTyp Recommended CDE
2 NIH Toolbox - Test domain battery type other  The free-text related to NIHTBTestDomainBatteryTyp specifying other text, as part of the NIH Toolbox NIHTBTestDomainBatteryTypOTH Recommended CDE
3 NIH Toolbox - Test name type  Type of NIH Toolbox test being administered, as part of the NIH Toolbox NIHTBAdminTestNameTyp Recommended CDE
4 NIH Toolbox - Test name type other  The free-text related to NIHTBAdminTestNameTyp specifying other text, as part of the NIH Toolbox NIHTBAdminTestNameTypOTH Recommended CDE
5 NIH Toolbox - Test administration language type  Type of language for test being administrated, as part of the NIH Toolbox NIHTBTestAdminLanguageTyp Recommended CDE
6 NIH Toolbox - Test administration language type other  Free-text related to NIHTBTestAdminLanguageTyp specifying other text, as part of the NIH Toolbox NIHTBTestAdminLanguageTypOTH Recommended CDE
7 NIH Toolbox - Form administered type  Type of NIH Toolbox form being administered, as part of the NIH Toolbox NIHTBFormAdminTyp Recommended CDE
8 NIH Toolbox - Test administration flag indicator  Indicator of a flag for the NIH Toolbox test being administered, as part of the NIH Toolbox NIHTBAdminTestFlagInd Recommended CDE
9 NIH Toolbox - Test administration flag type  Type of flag for the NIH Toolbox test being administered, as part of the NIH Toolbox NIHTBAdminTestFlagTyp Recommended CDE

NIH Toolbox Meaning And Purpose Survey CAT 18-85 (Appears Up To 1 Time)

# Title Short Description Variable Name Required? Type
1 NIH Toolbox Emotion Meaning and Purpose - Clear purpose scale  Scale of participant report of agreement to the statement: My life has a clear sense of purpose, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18ClrPurposeScl Recommended CDE
2 NIH Toolbox Emotion Meaning and Purpose - Satisfying scale  Scale of participant report of agreement to the statement: I have discovered a satisfying life purpose, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18SatisfyingScl Recommended CDE
3 NIH Toolbox Emotion Meaning and Purpose - Discovered scale  Scale of participant report of agreement to the statement: I have discovered a satisfying life purpose, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18DiscoveredScl Recommended CDE
4 NIH Toolbox Emotion Meaning and Purpose - Worthwhile scale  Scale of participant report of agreement to the statement: I generally feel that what I do in my life is worthwhile, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18WrthwhlScl Recommended CDE
5 NIH Toolbox Emotion Meaning and Purpose - Interesting scale  Scale of participant report of agreement to the statement: My daily life is full of things that are interesting to me, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18InterestingScl Recommended CDE
6 NIH Toolbox Emotion Meaning and Purpose - Worthwhile things scale  Scale of participant report of agreement to the statement: To me, the things I do are all worthwhile, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18WrthwlThgsScl Recommended CDE
7 NIH Toolbox Emotion Meaning and Purpose - Value scale  Scale of participant report of agreement to the statement: I value my activities a lot, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18ValueScl Recommended CDE
8 NIH Toolbox Emotion Meaning and Purpose - Reasons scale  Scale of participant report of agreement to the statement: I have lots of reasons for living, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18ReasonsScl Recommended CDE
9 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Understand scale  Scale of participant report of agreement to the statement: I understand my life's meaning, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18UnderstandScl Recommended CDE
10 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Meaningful scale  Scale of participant report of agreement to the statement: I have a good sense of what makes my life meaningful, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18MeaningfulScl Recommended CDE
11 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Grateful scale  Scale of participant report of agreement to the statement: I feel grateful for each day, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18GratefulScl Recommended CDE
12 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - No purpose scale  Scale of participant report of agreement to the statement: My life has no clear purpose, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18NoPurposeScl Recommended CDE
13 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Enough purpose scale  Scale of participant report of agreement to the statement: There is not enough purpose in my life, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18EnghPrpsScl Recommended CDE
14 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Trivial scale  Scale of participant report of agreement to the statement: Most of what I do seems trivial and unimportant, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18TrivialScl Recommended CDE
15 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Don't care scale  Scale of participant report of agreement to the statement: I don't care very much about the things I do, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18DontCareScl Recommended CDE
16 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Reason scale  Scale of participant report of agreement to the statement: I have a reason for living, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18ReasonScl Recommended CDE
17 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Productive scale  Scale of participant report of agreement to the statement: My life has been productive, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18ProductiveScl Recommended CDE
18 NIH Toolbox Emotion Meaning and Purpose - Sense of purpose scale  Scale of participant report of agreement to the statement: I feel a sense of purpose in my life, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMP18SnsPurposeScl Recommended CDE
19 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Meaning scale  Scale of participant report of agreement to the statement: My life lacks meaning and purpose, for ages 18+ as part of the NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18MeaningScl Recommended CDE

NIH Toolbox Meaning And Purpose CAT 18-85 Scoring (Appears Up To 1 Time)

# Title Short Description Variable Name Required? Type
1 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Raw score  Raw score, for ages 18+ as part of the CAT NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18RawScore Recommended CDE
2 NIH Toolbox Emotion Meaning and Purpose CAT 18+ - Theta score  Theta score, for ages 18+ as part of the CAT NIH Toolbox Emotion Meaning and Purpose Survey NIHTBMPCAT18ThetaScore Recommended CDE
3 NIH Toolbox Patient Reported Outcome (PRO) Measures - Age-adjusted scale score  Age-adjusted scale score, as part of the NIH Toolbox Patient Reported Outcome (PRO) Measures NIHTBPROAgeAdjSclScore Recommended CDE
4 NIH Toolbox Patient Reported Outcome (PRO) Measures - Age-adjusted national percentile value  Value of age-adjusted national percentile, as part of the NIH Toolbox Patient Reported Outcome (PRO) Measures NIHTBPROAgeAdjNationalPctVal Recommended CDE
5 NIH Toolbox Patient Reported Outcome (PRO) Measures - Fully-adjusted scale score  Fully-adjusted scale score, as part of the NIH Toolbox Patient Reported Outcome (PRO) Measures NIHTBPROFullyAdjSclScore Recommended CDE
6 NIH Toolbox Patient Reported Outcome (PRO) Measures - Unadjusted scale score  Unadjusted scale score, as part of the NIH Toolbox Patient Reported Outcome (PRO) Measures NIHTBPROUnadjSclScore Recommended CDE
7 NIH Toolbox - Standard error  Standard error (a statistical measure of variance that represents the margin of error for the Tscore), as part of the NIH Toolbox NIHTBStandardError Optional CDE

 Change History

 Administrative Change History